Self Host Personal Health Record (PHR)
from nix98@lemmy.world to selfhosted@lemmy.world on 05 Mar 14:50
https://lemmy.world/post/43883347

I am interested in self hosting a Personal Health Record (PHR) system. I don’t need my own EMR/EHR, I just want to be able to pull down my own data, host it, and navigate it.

For example, I’d like to be able to pull down my vitals/labs from my provider and look at trends over time. I’d like to be able to pull down my prescriptions to see when I went on/off different medications. I’d like to pull down doctor’s notes, so I can see when I first started complaining about poor sleep, to see if it correlates to any of my medications or some other health change.

I have tried Mere Medical, and it was able to pull down my information from my provider (who uses Cerner), but the functionality is quite lacking. You basically get a timeline view, but nothing to really organize or search through notes (they are mostly just linked documents), or anyway to pull down lab results and see trends.

FastenHealth has also come up in my search, but it seems the onprem is a very stripped down, limited version of their paid product.

Is anyone familiar with anything like this? Ideally, it’s be combined with a fitness tracker to pull my health data from my phone/wearables too.

#selfhosted

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tyler@programming.dev on 05 Mar 15:27 next collapse

I’d never heard that you could do this but it seems very smart. You could always contribute the features you want to Mere, since it’s open source. github.com/cfu288/mere-medical

That’s probably more likely to help you than trying to using a free version of a paid product.

nix98@lemmy.world on 05 Mar 20:50 collapse

Mere was interesting, but it runs entirely offline in a browser (which is pretty cool). But, this means all data lives in your browser’s localStorage (or indexdb), which would make it hard to sync between devices.

jjs@infosec.pub on 05 Mar 15:57 next collapse

Not exactly what you are asking for, but for curiosity sake, QVAC health is starting build out something but it is not a replacement. Funded by tether so ymmv. qvac.tether.io/products/health/

irmadlad@lemmy.world on 05 Mar 20:02 collapse

Not a solution but a comment. I’ve seen several selfhosted medical record keeper/organizers. I would definitely want 2FA on something like that.

nix98@lemmy.world on 05 Mar 20:49 collapse

Sure. But I’d also not host it publicly on the Internet, just on my local lan!